Insomnia and Perseverance

Team Tasha Vinyasa

I wake up now, multiple times a night, usually soaked in sweat. Sometimes I wake at 1am, or 2am and go back to sleep, but typically I can’t. Or I don’t for hours and then I do; passing out just 30 to 45 minutes before my 5am alarm rings. I’m not complaining so much as stating the facts. I used to toss and turn, and roll around in bed, but now I know better. Now I get up and try to be productive. I try to think POSITIVE thoughts, and put them to good use. It doesn’t always work, but like yoga, it’s a practice.  This morning, I knew laying in bed any longer would do the opposite. The itchy, restless, burning sensations in my bones, the hyper-sensitiving and anxiety was impossible to quell.

I got up. It was the only option.positive thinking

I shifted to my side, and picked up my phone, mostly to see how many hour of sleep I had manage to collect,  when I noticed a steady stream of email notifications. “Congratulations” they said, “you have received another donation”…. In a rush of excitement I jumped out of bed and into my office.

I reached my $7,500 fundraising goal yesterday evening around 9pm, which in itself was hugely exciting, but over night – more donations came pouring in. $5, $25, $50, $100, and then – $1,000…

Amazing.

YSC Tour de Pink Fundraising progress

When I read the emails and checked the status of my fundraising page, tears welled up in my eyes. It’s been a tough week for me, personally, with the date of my hysterectomy and oophorectomy looming on the horizon, and I am just exhausted from the culmination of a SUP Yoga season fraught with equipment and scheduling issues, and parenting challenges, so it doesn’t take much to make me weepy these days. These tears, however, were tears of joy.
It makes me feel indescribably good to help others. To know that these donations for the Young Survivors Coalition, will help other young women, like myself, battling through the process of breast cancer treatment, makes me feel useful and connected to my cancer community, and gives me a deeper sense of purpose. The overnight donations have pushed me onto the fundraiser leaderboard, and much closer to the next fundraising goal of $10,000 then I ever thought I would get. I’m on such a roll now, I can’t help but set the bar even higher.

So I’m bumping my goal all the way up to $10k.

The purpose is two-fold: the money raised continues to be the primary objective, the campaign, however, is a personal project, and a much needed distraction. In three weeks, I am returning to MGH for more cancer-related surgery. I am anxious and scared. Because I am a rape and child abuse survivor, thinking about the bodily location of the surgery and the fact that I will be unconscious, on an O.R. table, with a team of strangers moving organs out my body through my vagina, makes my heart race.

I’m not sure, unless you have been victimized in the same way as I was, that it’s possible to understand the PTSD that is triggered by these thoughts of helplessness and exposure. I don’t know that you fear being sedated and strapped down to a table as much as I have, unless you too have been pinned down in the middle of the night, and had your legs spread apart.

#nevergiveup

rape, cancer, it doesn’t matter – we never give up.

I have tried to describe the psychological stressors, to my partner and friends that make this surgery so much scarier than my double mastectomy, but I’m not sure they relate, or understand. Some times it feels like I have been talking and writing about my personal struggles for so long now, that the significance of this particular chapter of my trauma, or the gravity of this operation, has diminished. Sometimes I get the feeling like their empathy has simply worn out. And you know what, I can’t really blame them. It’s been a long, painful narrative. I only hope it has also given others, who have gone through similar struggles, promise and encouragement t0 keep on keeping on. Because that’s what we do. We fall down, and we get back up.

So… back to fundraising it is.

Dear readers, if my cancer diaries have touched you, if you have been following my journey – the one that started in March 2013 – if I have inspired you in any way, please consider making a donation of any amount to my upcoming 200+ mile charity bike ride for young women with breast cancer. I need you. They need us. It is all one and the same.

Thank you for taking the time to hold some space for us cancer warriors and thank you for holding space for me.

~Caitlin

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 {My Cancer Story: The Beginning}

(Making the Breast Decision)

(Life After the Knife)

{How to Talk to Someone with Cancer)

(Let’s be Friends)